Business Description

Our mission is to enhance the quality of the lives of people living with GNE Myopathy through advocacy, education, outreach, and funding critical research focused on treatments and a cure. NDF is governed by a rotating Board of Directors, managed by its CEO, advised by our Scientific Advisory and other committees and supported by staff and volunteers. Our goal is to improve the lives of current GNEM patients.We are committed to our patient population and cannot sit idly by to wait for a cure. By bringing patients, caregivers, doctors, and scientists together, with our programs we work to improve the lives of current GNEM patients while we actively pursue curative treatments.

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